Useful cystic fibrosis links
1. http://www.cysticfibrosis.org.au
Cystic Fibrosis Australia funds research into better treatments and ultimatley a cure for CF. CFA also manages the CF data registry, lead the national research program, conduct a biennial CF Conference, and support the quality improvement program including the clinic peer review program and the CF Standards of Care and Infection Control Guidelines.
CF Buzz is a website dedicated to providing the Australian cystic fibrosis community with the latest advice and news.
Spill is an online sexual and reproductive health resource for young people with CF. The website was developed by Cystic Fibrosis Victoria, together with the Royal Children’s Hospital – Melbourne and the Monash Children’s Hospital CF services.
CF Cooking is a joint project between Cystic Fibrosis Western Australia (CFWA) and the Sir Charles Gairdner Hospital (SCGH) Dietitian Paul O’Neill. It is a series of 6 videos, each with Paul joined by a new guest chef, as he prepare and cooks meals designed especially for people with CF.
